Harley

After undergoing extensive cancer treatment, Harley’s immune system was severely compromised, and his body can no longer produce antibodies to fight infections. To stay healthy, he now receives regular transfusions of plasma-based medicines known as immunoglobulins.

Harley’s journey began at just 15 months old when a small rash on his neck and groin led to his unexpected diagnosis. After tests at Royal Derby A&E, doctors discovered that Harley’s white blood cell count was dangerously high, and his bone marrow was filled with immature white blood cells. The diagnosis of leukaemia came late one night, with an ambulance rushing him to the Queen's Medical Centre in Nottingham.

Following this, Harley endured eight months of intensive chemotherapy, followed by over two years of maintenance treatment. During his chemotherapy, Harley’s health deteriorated rapidly, with severe weight loss due to his body’s inability to absorb food. Between December 2016 and February 2017, he lost a significant amount of weight, dropping from 14kg to 11kg.

After extensive testing, doctors discovered that Harley had no antibodies to protect him from infections, a condition known as hypogammaglobulinemia. Thankfully, immunoglobulin therapy was introduced, helping his body clear infections and regain the strength to eat again.

Harley’s medical team is confident he will rely on immunoglobulin therapy for life. His family is incredibly grateful to the donors who make this possible, as they continue to face the reality that without plasma donations, Harley’s survival would be at risk.

Harley remains protected from infections and continues to live a vibrant and active life with his family.

Now 10 years old and in Year 5 at school, Harley has flourished. He continues to be a cheeky, energetic boy, full of life and personality. Harley loves Sonic the Hedgehog, drawing, and spending time with his siblings, Ronnie, 11, and Kelsey, 17.

Recently, he has developed a passion for swimming and enjoys this new activity alongside his schoolwork and time with friends.

Harley’s family urges everyone to consider donating plasma and highlights the critical need for this life-saving gift.

Leanne, 41, Harley’s mum, said:

“He went so thin he could not even walk. His muscles wasted away, and he could barely move. It was heart-breaking. He was constantly sick and had severe diarrhoea. It was terrifying.”

“We were so relieved when they found out what was wrong. Without it, he might not have survived,”

“He’s happy, chatty, and so full of energy. He loves being with his family, whether it’s drawing or just being silly with his brother and sister. It’s such a relief to see him doing so well after everything he’s been through.”

“We have been through so much, and we know how close we have come to losing him. The trauma of seeing him so ill and knowing there was nothing we could do without plasma donations was unbearable, but now, thanks to these lifesaving donations, Harley is doing well, and we are hopeful for the future.” 

“I think people don’t realise how vital plasma is. When I tell people about Harley’s condition, they’ve never heard of it. Plasma donations are literally keeping my son alive,”

“For us, plasma donation is more important than anything – without it, we wouldn’t have our little boy.”